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Monday, 1 February 2016

Words Can Hurt

Before you make assumptions,
Think about how it feels,
Before you make assumptions,
Ask me what's real.


Before you accuse me,
Learn about the facts,
Before you accuse me,
Ask if you'd do that?


Before you judge me,
Put yourself in my place,
Before you judge me,
Say it to my face!


Before you slander me,
Open your mind and be alert,
Before you slander me,
Remember words can hurt.








#helenswriting

(Image: 'Pinterest')

Tuesday, 26 January 2016

Lost...and Found

Autumn 1994.


'Please don't make me give it up'...I said, slowly kneeling to get from the floor to the sofa.

Molly sighed and looked over at me. 'I know how much you love it', she replied, 'but it's not good for you...'

It was my turn to sigh. 'Can't I just have one more year? I've hardly started...'
'If you have one more year, your hips will be worse. You've already said you're struggling with the pedal...'

'But I've just bought myself some proper sticks and brushes...'

'I know' she replied, putting her arm around me, 'but your hips and your knees will suffer, and I wouldn't be a very good physio if I let you carry on, would I?'I bit my lip, in an attempt to stop myself from crying - and failed!
'No...I know'
She handed me a tissue from a small packet in her handbag,
'I'm sorry'...
'It's not your fault' I said, as sobs, became hiccups.
'I just don't like having to stop you doing something that means so much to you...Will you need a letter for your teacher'?
'Probably', I muttered quietly, and hiccupped again.


It was a foggy Thursday morning when I left my maths lesson, and made the short journey in my wheelchair, across lower school playground to the dusty old portacabin.

 I got out of my chair, and struggled up the few wooden steps, in exactly the same way I had almost every Thursday morning for just over a year.

I swallowed, as I knocked lightly on the door, and a knot formed in my stomach.
'Come on in, Helen' Mr Clayton said, in the same slightly brusque way he always did.
'Hello', he smiled, and came over to help me get to the stool, 'have you got your sticks'?
'No...' I replied, so quietly that I could barely hear myself speak. I cleared my throat, 'I'm sorry. I came to tell you I can't play the drums any more. I have to stop my lessons'.

Mr Clayton leant against the desk, 'You were doing so well...' he told me sadly...
I smiled, although by this time, I had tears in my eyes,
'I wasn't. I was struggling with the pedals. My knees hurt, and my physio says I need to stop, but I really don't want to. I'm sorry....'
'Ah...I understand, but I'll be sorry to see you go...
'Maybe after surgery I can come back...' I replied hopefully, -even though I knew it wasn't realistic,
'I hope so', he replied, but I think he knew what I did - it wasn't really going to be possible.


He helped me down the stairs of the dusty portacabin, and I cried as I sat in my wheelchair, because I wanted to play the drums so badly, and it had become another thing I couldn't do.

Mr Clayton didn't see me cry, but as I began to push myself across the playground, he called out to me,
'Helen, - you can sing!  You love that, so do that instead. Take lessons - use what you already have! No one can take that from you'!
By the time I got back in, and down the corridor to my maths lesson, I was smiling again.
Top of Form




Bottom of Form


Image: 'Pinterest'.


#helenswriting 

Monday, 25 January 2016

Part of Me Wishes for Snow -(A Personal 'Stream of Consciousness Piece) -October 2012



Part of me wishes for snow. I love it when the world is covered in a white blanket. The warm tones of earth rest beneath.

I like to think that everything sleeps sometimes, but nature never sleeps. Instead it’s
always striving, colours and textures go on changing- from the falling of leaves to the bareness of trees, as another year passes by.

Part of me wishes for snow, because everything seems calm and timeless. I love to watch it fall from the night sky, like tiny gentle feathers. It feels like they float freely and land where they want to. It must be nice to do that. Until daylight, no one will stand on it, destroying the blanket with large, lasting footprints. Steps that are taken for granted.

Part of me wishes for snow, so that the Christmas lights reflect off it, and the firelight seems to burn brighter. Outside, nature carries on but I don't have to see it. I don't have to think about new lives beginning, sprouting afresh, the way nature is supposed to do.

Part of me wishes for snow, because I need that blanket too. I need to see civilisation stop, on the surface anyway. Stop striving, fighting, moving forward, making money. Everything that is usually at the edges of my vision has temporarily disappeared.

The world is at my level. It's flat and equal while we share the white blanket. No one else can move properly either! I can hear laughter and watch a snowball fight from the window. I love my hands around a mug of hot chocolate, and who knows? Maybe we'll toast marshmallows! I love the simple things, and outside, for now so do they. The world is mine tonight. 

Saturday, 19 December 2015

My Life


This isn't nothing,
This is my life!
I'm someone's daughter,
someone's wife.

Yes, I have a disability,
But that is only a part
Of me.

There are many things
That I can't do,
But I shouldn't have to answer
To you!

You can call me a 'scrounger'
Take my self-esteem,
But I won't let you take
My dreams.

We die in thousands,
You lie through the press,
Cause fear and nightmares,
And kill us, with stress!

Go ahead, take our money
Rip lives apart,
But I've never given up
And I'm not about to start!

You think it's acceptable
To add to our pain
Kick us as we're down,
So we can't get up again.

Your words will wound
Leave scars,like a knife
But I am not nothing,
And you don't get my life!








Thursday, 17 December 2015

Dear Santa...

Dear Santa,

I have been a very naughty girl this year but it's all for a good cause, and I'm confessing in advance.

I've done my best to be nice - even to Tories (sometimes)! Surely that's worth a place on the 'nice' list! You have no idea how difficult that is...especially at the moment.

I've been quite restrained on Facebook, too! Not too much swearing,and I've managed to keep my 'inner bitch' fairly well in check. No (less than favourable) comments, about certain celebrities,either! - You will know, who I mean!

It is possible you might be under the impression that I drink too much wine, but I don't really - and anyway, I'm not the one who drinks all the alcohol left for me, (all around the world), during the course of one night, so, yeah,...pot, kettle!

 The real point of this letter though, is to say that I don't want anything for Christmas, other than a new government - one that cares about disabled people rather than hurts us, and destroys our lives.

I realise that it's very short notice, for you to arrange such a thing so I'll give you until...say...2020, (but much sooner, would be better) to sort that one out for me! We need all the help we can get, at the moment!

Maybe, in the meantime you could sprinkle some magic dust, in the direction of all those suffering at the hands of the government. Those hurt and made homeless by Bedroom Tax, left with next to nothing by unfair, (and heartless) benefit sanctions - masquerading as Welfare 'Reform'.

Help them try and hang on, just a little bit longer - and help me to do it too!

I will leave a 'no benefit sanctions', protest sign, next to your plate of mince pies, on Christmas Eve, - perhaps you could attach it to your sleigh, for me? You know what they say, 'Every Little Helps!'...Ahem,no, better not get started on that particular phrase, actually...!

Anyway, I know you're busy at this time of year, so I'll leave you to get on...

Travel safely,

Helen




Friday, 11 December 2015

Lucy

I see her
For a few seconds here and there,
A face in a dream,
A moment in a mirror.

I see her dancing freely
To music only she could hear,
I watched her fall,
And face her fear.
I know her drunk as sober,
On clear mornings and hazy nights.

Maybe she was on a journey,
Through a garden, or doors
With locks and keys,
Finding hope in tiny boxes,
Or tripping amongst leaves.

She can be a clown
or caring friend
Wearing blankets or evening gown.
Lost in hotel corridors,
And never found again.

I watch her character grow,
She's caught between mind and paper,
Always waiting for me to take her,
Places I can't go.

I won't write her down yet,
She'll loiter for longer
In a library among dusty books,
Finding pens
with ink long dry,

And tomorrow she'll run through rain,
But only I'll know why...
‪




‬
#helenswriting

Saturday, 5 December 2015

Another Day, Another Panic!

Had quite a nice day yesterday. Managed to switch my brain off, and relax. The pain was back down to 'normal' levels.
Was meant to go and see a friend with a disability issue, but she was in too much pain 'to form coherent sentences'! I can identify with that!
Actually, it's one of those situations when I'm not sure what the answer is for her - so all I can really do, is listen while she vents. I can do that until the cows come home!
As for the other friend, (the one in the homeless shelter, with her kids), she's doing OK, and on a housing list. I hate the fact that she didn't feel she could tell me, because she didn't want me to worry, but bless her for sparing me.
There's just so much going on that the media isn't reporting, no matter how much we try and draw attention to it, - but it's been that way for years now.
What with the (very convenient) distraction tactic of Corbyn's leadership, plus the Syria issue, we stand even less chance than normal.

I'm feeling a bit smug because all my Christmas shopping is done! Hubby helped me. I always feel a bit guilty for doing it on line, because I'd rather be helping the high streets, but I don't really have the mobility to do that any more, and certainly not the energy!

Had another anxiety attack this morning, albeit a small one. The DWP sent Christmas bonus notifications through the post, and of course, on seeing the brown envelope, my first thought was, 'it's my turn for the Work Compatibility Assessment'. I freaked, and started shaking! Couldn't even bring myself to pick it up, and had to get hubby to open it for me.

My heart was beating so fast and I just couldn't catch a breath. I felt all shivery inside.

The relief was unbelievable! I dread to think what extra stress does to my (already burnt out) adrenal glands, so I really try yo take everything in my stride, but it's not easy under this government. Things that were secure, now aren't.

Whether they accept it or not, - (they don't), what they're doing to us is a constant low level form of psychological torture, and it's happening in our own homes, where we should feel safest and at ease with ourselves.

My one consolation (or not, in a way), is the fact that I'm not going through this alone. So many disabled and ill people I know have gone through the exact same thing today .

We go through it every day, whenever the letterbox goes. That's no way for anyone to be living, never mind people who already have the struggle of illness and disability to deal with!

Hubby says 'You can't go on like this' - but it's not like we have a choice is it? We didn't ask for this government to make our lives hell through 'scrounger rhetoric', fear of assessments, and making us feel that we simply aren't worth it, but that's what we're living with!

My hands were still shaking when he handed me a cup of tea, so of course I spilt it! Luckily he knows better than to fill the mugs right to the top for that very reason, so it could've been worse!

The only thing I really want for Christmas, is for the government to stop putting us through all this! They are punishing us for being disabled - and it's not like we have any choice in that, either! Do they think I would've chosen Cerebral Palsy and constant pain, and limitations?!

I'd give anything in the world to feel safe, and wanted in society again. I'd like some self esteem and dignity back. It's not right that they can do this to us, and hardly anybody else seems to care!

The only thing I can really do is help raise awareness, and hope that people have a bit of compassion, and realise that what is being done to us is inhumane, and it could happen to anyone! 

Don't turn a blind eye to the suffering and thousands of deaths of disabled people simply because you think it doesn't impact on you. You never know when it just might...!



#helenswriting